After nearly 2 months of waiting for this test result, it came back negative (meaning no dystonia)! I am so relieved!!! Now they want to admit Allie to the hospital for 3 days and see if they can catch her episodes on an EEG. This would diagnose if she was having seizures. Because her episodes are only every 2-3 weeks, this may be hard to time when she would have some. Also, because of respiratory season, they said the hospital is too full so we can't just call when she starts showing symptoms. So. . . the neurologist team is going to discuss what they want to do at this point. Thanks so much to everyone for your thoughts, prayers, and support!!!!
2 comments:
SO glad you finally found out what it isn't :)
Yeah! So glad to hear that! She is so cute!
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