I've had a few people asking, so I'm just going to write a brief update. She has not had any seizure episodes since September!!! She has not had any torticollis (neck tilting) since the beginning of March. I put a couple pictures of her torticollis (bottom two) and her "now" picture on the top. Pediatric neurology "signed off" on her in May. That means no more appointments, tests, blood draws, etc. YAY!!!! She is doing really well and completely developmentally normal! She truly is our little miracle!!!
